Vanderbilt Referral

written by

kevin Jacobi

posted on

October 7, 2024

After the refractory news, Thompson Oncology Group referred Cathy to Vanderbilt. There is a doctor there who specializes in refractory MM.

We got an audience quickly. Last week was about loading up and shooting to Nashville for a few days.

Vanderbilt wants to administer a therapy called CAR-T, which is essentially an engineering of the blood to find and fight cancers cells. It is unclear if Cathy will be a candidate however due to her paralysis. 

Dr. D was very caring, thorough and candid. He characterized Cathy’s Cancer as high risk and very aggressive. He said that Cathy’s cancer essentially “learns” ,  and that is what happened to Revlimid when we were so close to the 5%. He was candid and said it would eventually catch up with Darzelez as well and the goal was to get her to CAR T before that happened.  

He explained the CAR T path and the hope we could get her in by Christmas. If we don’t make it to Christmas (Cancer beats Darzelex) there is another drug in the quiver he could turn to.

So - what was good about Vanderbilt is – a known path or paths Cathy could take.  We are hopeful for acceptance into CAR T.

In the mean time, Cathy keeps fighting with Darzelex under the care of Thompson Oncology while Vanderbilt works on the deeper fight. 

In a few weeks (special blood draw), we should know more about how Darzelex is doing.  

Keep Cathy in your prayers.

More from the blog

Refractory. What an ugly word.

In last month’s update, I mentioned an uptick in one of the cancer markers. Shortly after that update a routine lab prompted a flurry of diagnostic activity (new PET, biopsy, office sit down, etc.)  and the results are not what we wanted to hear. So – after 9 months of chemo and steadily chipping away at this bastard, our girl is basically starting over with a new drug. Supposedly, it is the bombdigity and tailer made for a stubborn cancer of this type. God and I will have words one day. Anyway – Cathy is a fighter and remains tough but a  9 month slog is unforgiving and weighs on her each day.    The Early October labs will be a special MM deep dive and will give us some indication of how this new drug is performing. Meanwhile -  Say a prayer for our girl, and tell your friends to do the same. 

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